Disability, Participation and Apparel throughout the Life Course


  • Jessica Dimka
  • Allison Kabel
  • Kerri McBee-Black




Disability, aging, apparel, participation


There are a growing number of people living with disabilities (PLWD) throughout the life course and across the disability spectrum. While much attention has been paid to environmental barriers to social participation for PLWD, apparel-related barriers have been largely overlooked. We conducted an online survey of 110 PLWD to identify challenges to finding appropriate clothing and related concerns regarding social participation for members of different adult age categories. Survey results included (1) difficulties finding or purchasing appropriate clothing and some apparel-related barriers to participation were more frequently reported by respondents in older age groups and (2) the increase in complications were not simply directly associated with aging. 


Banks, Karen. “Adaptive Clothing – Preserves Independence and Assists the Caregiver.” Lippincott’s Case Management 6, no. 6 (2001): 243-245.

Battles, Heather. “Toward Engagement: Exploring the Prospects for an Integrated Anthropology of Disability.”

Explorations in Anthropology 11, no. 1 (2011): 107-124. http://vav.library.utoronto.ca/index.php/vav/article/view/14724

Becker, Gay. “Metaphors in Disrupted Lives: Infertility and Cultural Constructions of Continuity.” Medical Anthropology Quarterly 8, no. 4 (1994): 383–410. doi:10.1525/maq.1994.8.4.02a00040.

Brault, Matthew W. “Americans with Disabilities: 2010.” Current Population Reports. Washington, D.C.: U.S. Census Bureau (2012). http://www.census.gov/prod/2012pubs/p70-131.pdf

Buse, Christina, and Julia Twigg. “Clothing, Embodied Identity and Dementia: Maintaining the Self through Dress.” Age Culture Humanities 2 (2015):71-96.

Carroll, Katherine, and Kevin Gross. “An Examination of Clothing Issues and Physical Limitations in the Product Development Process.” Family and Consumer Sciences Research Journal 39, no. 1 (2010): 2-17. doi:10.1111/j.1552-3934.2010.02041.x.

Carroll, Kate E., and Doris H. Kincade. “Inclusive Design in Apparel Product Development for Working Women with Physical Disabilities.” Family and Consumer Sciences Research Journal 35, no. 4 (2007): 289-315. doi: 10.1177/1077727X07299675.

Freeman, Carla M., Susan B. Kaiser, and Stacy B. Wingate. “Perceptions of Functional Clothing by Persons with Physical Disabilities: A Social-Cognitive Framework.” Clothing and Textiles Research Journal 4, no. 1 (1985): 46-52. doi: 10.1177/0887302X8500400107.

Garner, Myrna B., and Vickie L. Douglas. “Apparel Needs of Aging and/or Disabled Women.” Journal of Women and Aging 3, no. 4 (1991): 23-35. doi:10.1300/J074v03n04_03.

Ginsburg, Faye, and Rayna Rapp. “Disability Worlds.” Annual Review of Anthropology 42 (2013): 53-68. doi: 10.1146/annurev-anthro-092412-155502.

Hammel, Joy, Susan Magasi, Allen Heinemann, Gale Whiteneck, Jennifer Bogner, and Evelyn Rodriguez. “What Does Participation Mean? An Insider Perspective from People with Disabilities.” Disability and Rehabilitation 30, no. 19 (2008): 1445–1460. doi:10.1080/09638280701625534.

Hansen, Karen Tranberg. “The World in Dress: Anthropological Perspectives on Clothing, Fashion and Culture.” Annual Review of Anthropology 33 (2004): 369-392. doi: 10.1146/annurev.anthro.33.070203.143805

Jaeger, Gunilla, AnnCatrin Röjvik, and Britta Berglund. “Participation in Society for People with a Rare Diagnosis.” Disability and Health Journal 8, no. 1 (2015): 44–50. doi:10.1016/j.dhjo.2014.07.004.

Johnson, Kurt L., Pat A. Brown, and Elizabeth S. Knaster. “Aging with Disability in the Workplace.” Physical Medicine and Rehabilitation Clinics of North America 21, no. 2 (2010): 267–279. doi:10.1016/j.pmr.2009.12.004.

Kubina, Lucy-Ann, Claire-Jehanne Dubouloz, Christopher G. Davis, Dorothy Kessler, and Mary Y. Egan. “The Process of Re-Engagement in Personally Valued Activities During the Two Years Following Stroke.” Disability and Rehabilitation 35, no. 3 (2013): 236–243. doi:10.3109/09638288.2012.691936.

Lamb, Sarah. “Permanent personhood or meaningful decline? Toward a critical anthropology of successful aging.” Journal of Aging Studies 29 (2014): 41-52. http://dx.doi.org/10.1016/j.jaging.2013.12.006

Mikula, Pavol, Iveta Nagyova, Martina Krokavcova, Marianna Vitkova, Jaroslav Rosenberger, Jarmila Szilasiova, Zuzana Gdovinova, Johan W. Groothoff, and Jitse P. van Dijk. “Social Participation and Health-Related Quality of Life in People with Multiple Sclerosis.” Disability and Health Journal 8, no. 1 (2015): 29–34. doi:10.1016/j.dhjo.2014.07.002.

Nessley, Eleanor, and Rosalie R. King. “Textile Fabric and Clothing Needs of Paraplegic and Quadriplegic Persons Confined to Wheelchairs.” Journal of Rehabilitation 46, no. 2 (1980): 63-67.

Ortman, Jennifer M., Victoria A. Velkoff, and Howard Hogan. An Aging Nation: The Older Population in the United States. Washington, D.C.: U.S. Census Bureau, 2014, https://www.census.gov/prod/2014pubs/p25-1140.pdf

Perkinson, Margaret A., and Samantha L. Solimeo. “Aging in Cultural Context and as Narrative Process: Conceptual Foundations of the Anthropology of Aging as Reflected in the Works of Margaret Clark and Sharon Kaufman.” The Gerontologist 54, no. 1 (2014): 101-107. doi:10.1093/geront/gnt128

Reid-Cunningham, Allison Ruby. “Anthropological Theories of Disability.” Journal of Human Behavior in the Social Environment 19 (2009): 99-111. doi: 10.1080/10911350802631644

Sofaer, Joanna R. The Body as Material Culture: A Theoretical Osteoarchaeology. Cambridge: Cambridge University Press, 2006.

Stalp, Marybeth, Rachel Williams, Annette Lynch, and M. Elise Radina. “Conspicuously Consuming: The Red Hat Society and Midlife Women’s Identity.” Journal of Contemporary Ethnography 38, no. 2 (2009): 225-253. doi: 10.1177/0891241608316997

Topo, Päivi, and Sonja Iltanen-Tähkävuori. “Scripting Patienthood with Patient Clothing.” Social Science & Medicine 70, no. 11 (2010): 1682–1689. doi:10.1016/j.socscimed.2010.01.050.

Turner, T. “The Social Skin.” In Reading the Social Body, edited by C.B Burroughs and J. Ehrenreich, 15-39. Iowa City: University of Iowa Press, 1993[1980].

Twigg, Julia. “Dress and the narration of life: Women’s reflections on clothing and age.” In Auto/Biography Yearbook 2009, BSA Auto/Biography Study Group, edited by A.C. Sparkes, 1-18. Nottingham: Russell Press, 2009.

Twigg, Julia. Fashion and Age: Dress, the Body and Later Life. Bloomsbury: London, 2013.

Wang, Yunyi, Daiwei Wu, Mengmeng Zhao, and Jun Li. “Evaluation on an Ergonomic Design of Functional Clothing for Wheelchair Users.” Applied Ergonomics 45, no. 3 (2014): 550-555. doi:10.1016/j.apergo.2013.07.010

White, Louise Wendt, and Merry Jo Dallas. “Clothing Adaptations: The Occupational Therapist and the Clothing Designer Collaborate.” The American Journal of Occupational Therapy 31, no. 2 (1977): 90-94.

Wingate, Stacy B., Susan B. Kaiser, and Carla M. Freeman. “Salience of Disability Cues in Functional Clothing: A Multidimensional Approach.” Clothing and Textiles Research Journal 4, no. 2 (1986): 37-47. doi: 10.1177/0887302X8600400206.

World Health Organization. Towards a Common Language for Functioning, Disability and Health: ICF, The International Classification of Functioning, Disability and Health, 2002, http://www.who.int/classifications/icf/en/



2017-06-06 — Updated on 2023-04-05